Joy vs. happiness

Joy vs. happiness

I am in rush mode, so we can be on the road before the morning traffic jams. Inhaling with saline, putting bronchodilator into the tracheostomy tube, connecting the cough machine, suctioning, potty chair, suctioning, deflating the breathing support bag of the trach,...
Purifying Word

Purifying Word

We have been sitting at the dining table again for more than an hour. Vince keeps the food in his mouth for long minutes and each swallowing is a battle. I think about what I might be doing wrong, or in what area Vince should get more development. I am tired of...
Ask for wisdom!

Ask for wisdom!

„Keep me safe, my God, for in you I take refuge.” Psalms 16:1 We are in the hospital again. Vince had a laryngoscopy and other check-ups. I drag myself with sadness in the morning, I try to comprehend the diagnosis established by the doctors, according to which...
Conference call from Jesus

Conference call from Jesus

Vince is signaling that he would like to turn. I get up, turn him over, and as I lift him, I feel blood running down my legs. I get a clear head in a second thanks to my period, I quickly turn the baby monitor on, and I am off to take a shower at 4:30 in the morning....