by Mom Reloaded | Jan 13, 2017 | Blessing, Education, God, Mom, Nursing, Pray, Tracheostomy Tube
I sit in the hallway in the kindergarten, drinking hot tea from my travel mug and listening to audio material from my Bible school. Vince was able to start school with the guarantee that I could stay in the building every day, so if there is a need to do something...
by Mom Reloaded | Dec 23, 2016 | Blessing, disability, Entertaining, God, Mom
I am in rush mode, so we can be on the road before the morning traffic jams. Inhaling with saline, putting bronchodilator into the tracheostomy tube, connecting the cough machine, suctioning, potty chair, suctioning, deflating the breathing support bag of the trach,...
by Mom Reloaded | Nov 23, 2016 | Blessing, disability, God, Healing, Hospital, Mom, Other
I stand on one foot and run hot water onto the other which is in the sink of the bathroom in the hospital ICU. I balance myself and giggle at the grotesque, twisted position and I enjoy getting clean with the help of a bathroom sink shoved into a ten square-feet area....
by Mom Reloaded | Nov 2, 2016 | Blessing, disability, God, Mom, Nursing
We have been sitting at the dining table again for more than an hour. Vince keeps the food in his mouth for long minutes and each swallowing is a battle. I think about what I might be doing wrong, or in what area Vince should get more development. I am tired of...
by Mom Reloaded | Sep 23, 2016 | Blessing, disability, God, Hospital, Mom
„Keep me safe, my God, for in you I take refuge.” Psalms 16:1 We are in the hospital again. Vince had a laryngoscopy and other check-ups. I drag myself with sadness in the morning, I try to comprehend the diagnosis established by the doctors, according to which...
