Blog
Vince is a master chef!
“For the entire law is fulfilled in keeping this one command: ‘Love your neighbor as yourself.’” Galatians 5:14 Location: playground at the churchyard Time: Sunday, 1 PM Participants: Hóvirág, Hóvirág’s dad, Vince, Vince’s mom, Vince’s dad “Why is his hand this way?”...
Mother-Manager quits!
It’s 3 o’clock in the morning. I hear Vince groaning, he wants to turn around. I get up, remove the CPAP machine from his trach (this supports his breathing), uncover him and carefully turn him. I look at his face while I am doing this, I can see he is dreaming...
I live like a prayer warrior
I pray… I pray that the tracheostomy tube will be out, and Vince can breathe through his nose and mouth. I pray that he’ll be able to sit on his own. I pray… I pray that he learns to speak. I pray that he is able to stand and learn to walk. I pray that he is able to...
Do you think you are breathing because You want to?
Yesterday we rode our bikes to the playground and back. A trivial story, right? You have done this with your child a thousand times. But I had to ask for Jesus’ blessing for this as well, because I have learned that without Him I am not capable of anything. I asked...
Never-ever take your child with trach to swim!
Summer is in full swing. The beach is the best antidote against a heat-wave. Isn’t this so obvious for everyone? But for people with a tracheostomy tube this equals danger, fear, helplessness and the feeling of self pity and anger that it’s just another thing that...
Maternal Anxiety
I have had the opportunity to worry about lots of things since the birth of my son. I worried when he couldn’t take a breath when he was born... I worried, because after his birth I couldn’t embrace him for 23 days, and I only could see him for an hour every day...
A True and Faithful Friend
Our son Vince had a corrective chest surgery in Germany, because there was less than 0.4 inch space between his spine and sternum. Due to the deformity of his ribs his left lung was in danger, so we set out to go to Hamburg, where the Altona Children’s Hospital took...
How He Teaches Me!
We were about to finish dinner, I measured Vince’s blood oxygen level, it was perfect. And then I suddenly notice that something is not right, he has started crying. I ask if something is hurting, but he is signaling no. He says: Dad. I tell him Dad is having dinner...
Birthday Sum-Up
One is always pensive a little on their birthday, thinking about what happened in the past year. This is the 4th year I have collected what actually happened to me, and I sent the list to those who greet me on my birthday. I put together the sum of my previous years...
ICU Symphony
The monitor is beeping in the room of the ICU. They are in the process of moving the 6-day-old newborn from the next bed who had surgery yesterday. They roll everything out to get sterilized. Metal castor-wheels clank everywhere. In the midst of a family laughing...
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